Parents: In caring for your child with special health needs, you may get information and paperwork from many sources. A Care Binder can help you organize the most important information in a central place and share key information with members of your child’s care team.
Young adults: You may get information and paperwork from many sources related to your health and care. A Care Binder can help you organize the most important information in a central place and share key information with members of your healthcare team.
At the end of this article is a link to where you can download Care page templates. Look through the pages and print those that you think will be helpful.
What is a Care Binder?
A Care Binder is an organizing tool for families who have children with special health care needs. Use a Care Binder to keep track of important information about your child’s health and care.
How can a Care Binder help me?
In caring for your child with special health needs, you may get information and paperwork from many sources. A Care Binder helps you organize the most important information in a central place. A Care Binder makes it easier for you to find and share key information with others who are part of your child’s care team.
Use your Care Binder to:
- Track changes in your child’s medicines or treatments
- List telephone numbers for health care providers and community organizations
- Prepare for appointments
- File information about your child’s health history
- Share new information with your child’s primary doctor, school nurse, daycare staff, and others caring for your child
What are some helpful hints for using my child’s Care Binder?
- Store the Care Binder where it is easy to find. This helps you and anyone who needs information in your absence.
- Add new information to the Care Binder whenever there is a change in your child’s treatment.
- Consider taking the Care Binder with you to appointments and hospital visits so that information you need will be close at hand.
How do I set up my child’s Care Binder?
Step 1: Gather information you already have.
- Gather up any health information you already have about your child. This may include reports from recent doctor’s visits, immunization records, recent discharge summary of a hospital stay, this year’s school plan, test results, or informational pamphlets.
Step 2: Look through the pages of the Care Binder.
- Which of these pages could help you keep track of information about your child’s health or care?
- Choose the pages you like. Print copies of any you think you will use. They are on the www.chop.edu internet site. Type in Care Binder.
Step 3: Decide which information about your child is most important to keep in the Care Binder.
- What information do you look up often?
- What information is needed by others caring for your child?
- Consider storing other information in a file drawer or box where you can find it if needed.
Step 4: Put the Care Binder together.
- Everyone has a different way of organizing information. The only important thing is to make it easy for you to find again. We put together the supplies you need to get started.
- Ask for help from your health care providers.
Click here to download templates of Care pages that may be useful for you.